Carers Week 18th - 24th June 2012
The theme for this year’s Carers Week is
“In "" In sickness and in Health In sickness and in health”.
Carers Week is now the biggest awareness raising event
in the UK. Last year we involved over 100,000 carers,
1,700 local organisations and held 8,000 events. The
annual carers survey will be released soon and we are
keen to have as much input as possible so we can find
the true picture of caring and will be asking carers how
much their caring role impacts on their health and wellbeing.
Registration is open on-line at
The Carers Week survey we do annually is now live on-line.
I would be grateful if you could get as many carers as possible to complete it
in order that we get valuable research and information from Wales.
Attached is the link to the survey -
Many thanks for your help
Introduction to Pack for Carers
To assist with a caring role, an Introduction to Caring Pack is available.
It contains the following information:
Are you a carer (download 156k)
The pack can be downloaded by clicking on the documents above or you can telephone
Pembrokeshire County Council Contact Centre and request a copy.
Tel: 01437 764551
STOP PRESS... STOP PRESS... STOP PRESS... STOP PRESS...
We can now offer carers one journey per week.
call John & Denise in Pembroke
01646 685952 to book your journeys.
News for carers in Pembrokeshire
Issue 37 - November 2011
Click here - http://www.pavs.org.uk/carers/documents/CarersGazetteNov11C.pdf
Macmillan Cancer Support and Relate Cymru have joined forces to provide a free relationship counselling service for people affected by cancer in the Hywel Dda area. Counselling appointments are available in Carmarthen, and it is hoped to offer the service in the Narbeth area as well. Appointments can be made by contacting 01792 454412 firstname.lastname@example.org For more information, contact: Claire Lewis, 075828 72784 email@example.com
Please find attached details of the self care event we are running … The event is aimed at absolutely anyone with any long term health condition who would like to know a bit more about what we mean by self management. There are two sessions a morning one and an afternoon one. It is open access … walk in off the street
We would be extremely grateful if you could circulate this information to anybody who you feel may be interested
Senior Education Programme for Patients Co-ordinator
Rhaglen Cleifion Arbenigol Cymru / Education Programme for Patients Wales
Bwrdd Iechyd Hywel Dda / Hywel Dda Health Board
13 Heol Goring / 13 Goring Road
Sir Gaerfyrddin / Carmarthenshire
WHTN: 0 1874 506 / 0 1874 507
Rhif Ffôn / Telephone Number: 01554 779506 / 01554 779507
Ffôn Symudol / Mobile: 07814523017
Ffacs / Fax: 01554 779509
E-bost / Email: Caroline.Davies9@wales.nhs.uk
Gwefan / Website: www.eppwales.org
My usual days of work are Tuesday, Thursday and Friday
Carmarthenshire Pembrokeshire Ceredigion
Education Programmes for Patients (EPP) Cymru, formerly known as Expert Patients Programme, provide and deliver a range of free health and well being courses aimed at adults who are living with or caring for someone with a long term health condition(s).
Courses are usually run over six consecutive weekly sessions of 2½ hours and focus on a number of topics including:
The aim of our courses is to give individuals the confidence to take more responsibility to self manage their health, while encouraging them to work collaboratively with health and social care professionals. EPP Cymru courses are aimed at a wide range of individuals, reflecting diversity in terms of different health conditions, geographical locations and ethnicity.
Participants can choose to study for learning credits with Agored Cymru at level 1
In partnership with PAVS we are going to be running the first Looking After Me programme in Pembrokeshire for some time. We will be running this programme early April 2012 and are delighted to have the support of Nicole van Schie, Carers Development Worker based at PAVS in Pembrokeshire.
The Looking After Me programme is run by carers for carers, the course tutors understand the challenges that carers have in their daily life and maintaining their own health and well being as well as undertaking their caring role.
If you would like to know more about this course or would like to register your interest,
please don’t hesitate to contact us on 01554-779507.
Carers UK has expressed concerns about the Government's plans to replace Disability Living Allowance, the main disability benefit.
As part of plans to reduce spending on Disability Living Allowance by 20% (£1 billion) over the next four years, the Government has launched a consultation on proposals to scrap Disability Living Allowance and replace it with a ‘Personal Independence Payment’. Carers UK Chief Executive Imelda Redmond CBE, said:
“This proposal would be one of the biggest changes in disability benefits since Disability Living Allowance was created and has big implications for carers.
Although reshaping disability benefits does present opportunities to improve the application and assessment processes for disabled people, we are deeply concerned that these plans will mean that hundreds of thousands of disabled people will see their benefits reduced or removed.”
We are extremely disappointed that the proposals do not assess the knock-on impacts for families, which could be devastating, particularly for those who receive Carer’s Allowance alongside Disability Living Allowance.
Our research shows that carers depend on these benefits to pay basic bills and that carers are already spending their own income to pay for care for their loved-ones. Cuts like this to the incomes of people affected by disability could force more carers into poverty or mean they can no longer care.”
The consultation closes on 14th February and details can be found at
The state of caring in 2011
To help us campaign for a better deal for carers in the future we need even more carers to complete our State of Caring survey to tell us what their lives are like today. You can help by spreading the word and publishing the link http://www.surveymonkey.com/stateofcaring
Or download the PDF and send it to carers you are in touch with. more…
Carers' rights - are you up to date?
There's never been a more important time to keep up to date with carers' legal rights. The 2011 edition of Carers and their rights, the definitive handbook on the law relating to carers, by leading community care lawyer Luke Clements, is now available. more...
Don't cut care
It’s not too late to sign up to our ‘Don’t cut care’ campaign to help make sure councils prioritise services to older people, those with a disability and their carers.
You will receive a toolkit to help you build an effective local campaign and make sure carers voices are heard. more…
Click link below
for the latest edition of the
News for carers in Pembrokeshire
Issue 33 - November 2010
Carers’ Gazette -- Issue 31 - May 2010
News and Views from around Pembrokeshire
( older copies of Carer's Gazette further down)
You or the person you are looking after may be entitled to certain payments and grants to help with fuel bills or making your home warmer and more energy efficient. There are also simple things you can do to save energy and reduce your bills. You should also check to see if you or the person you are looking after are entitled to any benefits to increase your income.
Carers have certain legal rights to benefits and other help. Carers UK is aware of many carers who do not know about their rights or how to get help. Every year £840 million of carers’ benefits are unclaimed. Carers UK is here to make sure carers know about their rights and the help available to them. This guide sets out what rights carers have and how they can get:
To be sent free copies of the guide call 0808 808 7777 or download a copy below.
‘Caring for your income/pensions
and your health‛
And A Variety of therapy taster sessions
When giving up work to care, a carer’s first
thought is not about their pension, but about
managing care and making ends meet.
Without the right advice carers could be missing
· vital contributions to their state pension which
could affect long term finances
· claiming entitlements to extra financial
Come along and find out more information on
how you can maximize your income/pension.
Organisations who provide information, advice
and services to carers will be at the day to offer
advice and support.
We would also like to hear your views at the
We hope you can attend,
bring a friend if you wish.
We can help with travel and
replacement care costs
All Carers Welcome
For more information or to book a place please contact
Nicole van Schie at PAVS on 01437 771196 or 769422
Carers to be "priority group" for swine flu jab
Information from Learning Disability Wales :
A new, 2 year, £500,000 pilot project to help families with disabled children claim the benefits they are entitled to was announced by the Welsh Assembly Government on 12 May. The project, delivered by Citizen’s Advice Cymru, will look at the best ways to increase the household incomes of families with disabled children.
For further information please contact:
Kai Jones, Information Officer
Learning Disability Wales
Tel: 029 2068 1160
The Carers Poverty Protest is rapidly growing in momentum.
Not only are Carer Centres advertising it in their newsletters, but it is also on Carer and Disability websites, notably the PRTC (2 seperate articles),CUK, Crossroads, The National Pensioners Convention, Parkinson's etc.
We are in constant touch with 70 Centres, who in turn are in touch with others, many organising coaches to London for the day.
We have had a lot of interest for our cause from all party MP's, some of whom are planning on coming over to speak and some who have agreed to support the Question we hope to have asked in Prime Ministers Question Time.
We also have a film crew who will be filming the Protest, so bring your best smile along with your banner!
The on line version of the petition
is doing well and will be printed out in good time to be handed in to Downing Street
along with all the paper petitions which have gone out countrywide.
They will be handed in on the day by a group of 6 people, plus press and MP's, two of whom are George and his Mum, known on the CUK forum as 'The Old Doll'. George was the original 'instigator' of the Protest.
The Edinburgh Protestors will arrive outside the Scottish Parliament at 1.45pm for a rally with celebrity speakers followed by a Lobby of the MSP's. John Swinburne, leader of the Scottish Senior Citizens Unity Party and former MSP, has very kindly agreed to support the march in Edinburgh and to speak at the rally.
Welcome to Turn2us,
the new independent charity that helps people access the money available to them
Turn2us is a new charity that exists to help the millions of people living in financial need in the UK access the money available to them - through welfare benefits, grants and other financial help. It was founded in August 2007 by the welfare charity
Elizabeth Finn Care.
Turn2us provides information and access on grants and benefits in our free accessible one comprehensive website (www.turn2us.org.uk) and is developing a telephone helpline and services for people who help those in need. It also carries out research to inform policy and raises awareness of benefits and grants, to improve uptake.
If you are caring for someone, depending on your circumstances, you might have the right to the welfare benefits
Over 70 Carers and supporters attended the
CARERS RIGHTS DAY
The theme for the day was ‘Making the most of your money’
Held at the Rugby Club, Haverfordwest
on 5th December 2008
- Many came along to try a variety of therapy taster sessions for carers
for more details of the events of the day contact
Nicole van Schie,
Carers Development Worker on 01437 771196.
or E-mail : firstname.lastname@example.org
or visit the Carers Website:
Carers and Council Tax
Are you a carer?
Are you paying too
much Council Tax?
Carers UK have issued updated advice for
carers on their website, including a template
letter that carers can use to ask their council
to recalculate their council tax. To find out if
you should be getting a discount on council
Click link below
for the latest edition of the
News and Views from around Pembrokeshire
Carers’ Gazette -- Issue 31 - May 2010
Carers’ Gazette -- Issue 30 - February 2010
Carers’ Gazette Issue 29 - November 2009
Carers’ Gazette Issue 28 - August 2009
Carers’ Gazette Issue 27 - May 2009
Carers Gazzette Issue 26 - February 2009
Carers Gazzette November 2008
Carers August Newsletter 2008
(This also includes a complete new list of groups currently supporting Carers in Pembrokeshire)
Carers Gazette for March 2008 - follow the link:
http://www.pavs.org.uk/carers/documents ... ersion.pdf
Carers Gazette for May 2008 just click the link:
http://www.pavs.org.uk/carers/documents ... rMay08.pdf]
Carers Gazette Autumn Newesletter 2007
http://www.pavs.org.uk/documents/Newsle ... mn_000.pdf
Carers Home Page link to PAVS or contact
Nicole van Schie,
New Carers Development Worker on 01437 771196.
E-mail : email@example.com
or visit the Carers Website: www.pavs.org.uk/carers
36 - 40 High Street,
The Carers Network (also known as the Carers Forum) provides an opportunity for carers to have a say, air their views, let their voices been heard about services and support for carers in Pembrokeshire. This network exists for carers, voluntary organisations -who provide services for carers - and the statutory organisations to meet one another, share information and receive updates on development of services in the County.
The network meets at Carers Days, Parent/Carers Days, Carers Rights Days and any other days organised by the members of the Carers Strategy Implementation Group.
The Carers Development Worker, Nicole van Schie, at PAVS (Pembrokeshire Association of Voluntary Services) takes the lead in planning, preparing and organising the days for carers, where a varied programme is offered to the network of carers. Nicole was the Young Carers Development Worker at PAVS, previous to the role as Carers Development Worker. Nicole has been self-employed as Independent Manager Advocate for several years and worked in a Camphill Community in Carmarthenshire with young people with Learning Disabilities and Mental Health problems. Before that she managed her own accountancy business in the Netherlands.
New Pembrokeshire Networking website launched.
The new website will provide information for a range
of Networks including dates of future meetings, past minutes or reports and newsletters. Visit the site here
Carers Emergency Card Scheme
The Pembrokeshire Carers Emergency
Card Support Service is now up and
running. Carers can now register with
the Scheme and be offered 24 hour a
day emergency cover. To register with
the scheme, contact the main West
Wales British Red Cross number on
Once carers have received the
registration card, they can be assured
that if help is needed in an emergency
situation, it is only a phone call away –
ensuring peace of mind.
If anyone has any queries about the
scheme, please contact Jacky Lang at
the British Red Cross on
Looking for cavity wall insulation or more loft insulation?
The Home Energy Efficiency Scheme (HEES)
is a Welsh Assembly Government funded initiative aimed at making homes in Wales warmer, healthier and more energy efficient. The HEES grant provides a package of heating and insulation improvements up to the value of £3,600.
If you have a query about HEES, please call freephone 0800 316 2815, or go to their web site at: http://www.heeswales.co.uk/do-i-qualify.htm
REAL CHANGE NOT SHORT CHANGE CAMPAIGN UPDATE
Carers UK's Real Change not Short Change campaign continues to make an impact. An influential committee of MPs has published a report about carers' benefits and have backed our calls for immediate improvements to carers benefits and a radical overhaul of the entire system. Carers UK submitted evidence to the committee based on our Real Change not Short Change survey of carers' income.
Carers UK's reaction to the MP's report. more...
Summary of what the MP's said . more...
A group of carers have come together to organise a national protest on April 22nd 2009. This is a grassroots carer-led initiative and they need your help and backing. Carers UK and other carer's organisations are supporting the group, but what they need are carers to get on board and help.
They have an online forum to discuss and plan the protest and it's open to all. more...
For the protest and action against carers poverty
Carers UK has reacted to the Government's Welfare Reform Green Paper, which proposes that carers in receipt of Income Support will be moved onto Jobseeker's Allowance. Carers UK objects strongly to this proposal and will be campaigning to get it changed. more
Caredirections News Letter
CARE DIRECTIONS' NEWS UPDATE AUGUST 2008
Welcome to the Internet’s unique guide to care and the rights of older people.
The fundamental objective of this pioneering site is to empower people with the information they will need to make truly informed choices – to give them continuing control in their lives, or the lives of their loved ones.
Read more - www.caredirections.co.uk
follow the link to http: //www.pm.gov.uk/output/Page15734.asp
Gordon Brown has welcomed carers' groups to Number 10 to mark the launch of the new £250 million Carers' Strategy.
Speaking to guests inside Downing Street yesterday, the PM said that carers represented "the best of our country" through their "enormous contribution" to the lives of families around the UK.
The Government's new million Carers' Strategy includes £150 million set aside to help carers with respite breaks from their caring responsibilities and £6 million towards helping young carers.
Health minister Ivan Lewis said carers were "at the heart of 21st century families" and that "the responsibilities we ask of carers have never been greater". The new stategy also contained measures aimed at improving awareness among employers of carers' rights and pilot schemes to provide carers with regular health checks.
Imelda Redmond, chief executive of Carers UK, said the launch of the strategy signalled an "historic day" for carers.
Carers Handbook - Do you look after Someone at Home
A carers handbook for all Carers in Pembrokeshire was produce in 2002. It is intended to be a valuable resource of information, and is a book for carers developed by carers, Pembrokeshire County Council and the county`s development worker. So far 500 copies have been issued to Carers, the voluntary sector and Agencies. Updates will be produced shortly and forewarded to everyone who has a copy. If you are a carer or know someone who is, copies are available free of charge, you just need to phone:
the Contact Centre at Pembrokeshire County Council on 01437 764551
For a copy of the revised Carers Handbook click here,
please phone the County Council contact centre 01437 764551.
Shocking call to lump learning disability into mental health
A paper commissioned by Edwina Hart MBE AM, the Minister for Health and Social Services, has put forward a principle recommendation that a statutory body 'responsible for mental health and well being in Wales' is established. More worryingly it further recommends that the body would 'provide and lead services for people with learning disabilities'.
Click here to view article
: Many carers are setting up petitions to get the government to do more for carers.
Find out how you can back them, including a new campaign for student carers who are barred from claiming Carer's Allowance. more... 16.05.08
We the undersigned petition the Prime Minister to Pay Carers Allowance to carers for each individual disabled child or adult cared for. More details
Submitted by Nathalie Bishop of Mother and carer – Deadline to sign up by: 24 January 2009 – Signatures: 167
New : As council tax bills are issued Carers UK is urging all carers to check out if they paying the right amount. Some carers are entitled to a discount. more... NATIONAL CARERS STRATEGY
The Government is expected to publish its National Carers Strategy in June. Find out what Carers UK wants from the strategy. more...
Carers in Communities Conference
Preparing for the green paper overhaul in adult social care
: A new report from Carers UK highlights how new technology
can radically improve life
for carers and disabled people - more... 06.02.08
CARERS TELL PM "IT'S TIME TO DELIVER"
Prime Minister Gordon Brown met carers at a Carers UK and Department of Health event in Leeds last week.
Carers told the PM they expect him to deliver better support: more...
We're offering free membership. Yes, free membership because we know that carers have many calls on their finances.
To take advantage of our free offer simply fill in our online form by clicking here.
Scope are currently lobbying the UK Government to ratify the first disability specific human rights convention for disabled people: The UN Convention on the Rights of People with Disabilities.
This convention will promote, protect and ensure the full and equal enjoyment of human rights by all disabled people, not just prohibit discrimination. The UK Government has signed the UN Convention but has not yet ratified it. Until it does, the Convention is not legally binding on the UK.
Can I encourage you and as many people as you can to sign the petition and urge the UK Government to ratify the convention at: http://petitions.pm.gov.uk/ratifyconvention/
Swyddog Ymgyrchoedd / Campaigns Officer
www.caretotakealook.com This interactive website/CD ROM offers an introduction to the issue of caring using a variety of text, 'Care to take a look' includes :
4 THINGS YOU PROBABLY NEVER KNEW YOUR MOBILE PHONE COULD DO
There are a few things that can be done in times of grave emergencies.
Your mobile phone can actually be a life saver or an emergency tool for
survival. Check out the things that you can do with it:
The Emergency Number worldwide for Mobile is 112. If you find yourself
out of the coverage area of your mobile; network and there is an
emergency, dial 112 and the mobile will search any existing network to
establish the emergency number for you, and interestingly this number
112 can be dialed even if the keypad is locked. Try it out.
SECOND Have you locked your keys in the car?
Does your car have remote keyless entry? This may come in handy
someday. Good reason to own a cell phone: If you lock your keys in the
car and the spare keys are at home, call someone at home on their
mobile phone from your cell phone.
Hold your cell phone about a foot from your car door and have the
person at your home press the unlock button, holding it near the mobile
phone on their end. Your car will unlock. Saves someone from having to
drive your keys to you. Distance is no object. You could be hundreds
of miles away, and if you can reach someone who has the other "remote"
for your car, you can unlock the doors (or the trunk).
Editor's Note: It works fine! We tried it out and it unlocked our car
over a mobile phone!"
THIRD Hidden Battery Power
Imagine your mobile battery is very low. To activate, press the keys
*3370# Your mobile will restart with this reserve and the instrument
will show a 50% increase in battery. This reserve will get charged when
you charge your mobile next time.
FOURTH How to disable a STOLEN mobile phone?
To check your Mobile phone's serial number, key in the following
digits on your phon! e: * # 0 6 #
A 15 digit code will appear on the screen. This number is unique to
your handset. Write it down and keep it somewhere safe. When your phone
get stolen, you can phone your service provider and give them this
code. They will then be able to block your handset so even if the thief
changes the SIM card, your phone will be totally useless. You probably
won't get your phone back, but at least you know that whoever stole it
can't use/sell it either. If everybody does this, there would be no
point in people stealing mobile phones.
it on to your family and friends.
Case study: Self-directed care
An example of self-directed care in action is Joseph
Tomlinson (18) who has complex disability needs.
Joseph's mum Caroline says: “If he’d followed the usual
social care route, he’d probably be in residential care
right now – out of sight, out of mind.” Instead Joseph’s
life is now remarkable for its ordinariness. He has set up
his own social enterprise, studies at college and is now
buying his own home.
The difference in his life is thanks to support from In
Control, a partnership with individuals, families, local
authorities, community organisations and support
providers. They are developing this new system of social
care – Self-Directed Support – so that people such as
Joseph, can take control of their support money and
spend it in a way that makes sense to them without
unnecessary restrictions. Through In Control Joseph was
assessed and allocated a pot of money from social
services and other funding streams. This enabled the
family to employ eight personal assistants working on a
In Control is sponsored by the Department of Health,
Mencap, The Care Services Improvement Partnership
and the Valuing People Support Team. Some 95 local
authorities are already signed-up members and are
implementing the new system.
Caroline Tomlinson concludes: “After all I never wanted to
be his care manager, his accountant or his director of
services. All I ever wanted to be is Joseph’s mum, doing
things that mums do for their growing children – like the
washing! In Control has helped a lot in achieving this.”
For further information on In Control visit
CARERS LOSE £11,000 A YEAR IN EARNINGS
New statistics, published to coincide with Carers UK's Carers Rights Day, show that the average loss in earnings last year by carers who had either to give up their job, reduce their hours or take a more junior position was £11,050. more...
Ahead of first Carers Summit, carers deliver thousands of letters to Downing Street demanding reform of carers’ benefits.
A group of carers representing the UK’s six million carers deliver letters to Gordon Brown today (7 November 2007) calling for a fresh look at carers’ benefits and the financial support they receive.
The visit to No.10 Downing Street comes one day ahead of the first Carers Summit due to be held in London on Thursday 8 November.
The letters are part of Carers UK’s Real Change not Short Change campaign which is aiming to overhaul the benefits systems to give carers a decent standard of living and to enable them to work if they wish.
Imelda Redmond, Chief Executive of Carers UK says, “We’ve had a staggering response to our campaign and a wide range of messages showing the strength of carers’ feelings. The support that carers provide is worth £87 billion each year, yet in return the Carer’s Allowance is just £48 a week. Carers see this as an insult and want the system changed.”
Research by Carers UK shows that nearly three quarters of carers are worse off as a result of caring. A third struggle to pay bills and one in five has cut back on food.
Gordon Brown has made carers a priority by setting up a Standing Commission on carers, and launching the largest ever consultation for carers with a review of the National Strategy for Carers, which he has pledged will become a vision for the next ten years.
The Carers Summit, organised by Carers UK, will see some 250 carers from throughout the UK debate the crucial issues facing carers in the 21st century, including the lack of recognition they face, the low incomes they are forced to survive on and the need for health and social care services to better support carers. Ivan Lewis MP, Minister for Care Services and Anne McGuire MP, Minister for Carers’ Benefits, will be attending to hear carers’ views which they will feed in to the National Carers Strategy.
Kate Groucutt email: firstname.lastname@example.org.
or Patricia Orr. T. 020 7592 1980 M. 07889 140139
3. Carers UK is the leading campaigning, policy and information organisation of and for carers. Carers UK continues to make a difference to carers' lives by: campaigning for a better deal for carers; informing carers of their rights and what help is available; training and advising professionals who work with carers; working across the UK through its membership and networks of branches and affiliates. For more information, visit www.carersuk.org or for advice on your caring situation call CarersLine on T. 0808 808 7777.
Earlier this year Gordon Brown announced that the Government would review the National Carers Strategy and publish a new version next year, outlining a framework for carers' services over the next decade. He said it would involve "the biggest ever consultation with carers."
Carers UK has spent the year asking carers what they would like to see in the new Strategy and has published a report, reflecting those views -Carers Voices: Shaping the National Strategy - more...
We are continuing to campaign to make sure the Strategy addresses the most important issues for carers - such as income and employment, and receives proper funding.
If you've got something to say about the National Strategy and/or want to highlight a particular issue to the Government, you can still let us know: email email@example.com
Read more about the background to the new Strategy, including what Carers UK has been doing - more....
The Department of Health produces updates on the New Deal for Carers and the National Strategy - more...
High Support Needs Group
Launch New Carers Step2Health Project
duringCarers Week 2007
Parent Carers Healthy Steps
This new project aimes to imrove the heatlh and wellbeing of Carers by providing planned walks
tailored to Carers needs find out more about steps2health at www.healthchallengepembrokeshire.co.uk
Full story and Link to new page on web-site about the project Steps2Health
My life as a carer was the theme for Carer's week 2007. Financial - including financial planning for carer's, publishing carer's allowance, direct payments, other benefits, where to get advice etc. Career - flexible working hours, job propects, earnings, pension entitlements, promotion propects, getting back into the job market. Social life / relationships - caring being a life - changing experiance, limitations as a result of 24/7: time, energy, lack of focus on self. Health - look after yourself, health checks for carer's. This year 2 separate Carer's Day's were held in Pembrokeshire one for Parents of Children/Young People (0 - 25) with Disabilities, one was held on the 6th of June at Haverfordwest Cricket Club and one for all carers was held on the June 14th at Haverfordwest Rugby Club Both days provided an opportunity to hear various speakers and a chance to get involved in some discussions about varoius caring roles. A delicious lunch was provided on both days followed by some therapy taster sessions, which gave everyone a chance to relax and unwind away from thier caring roles. ***********************************************Circles Network Wales is a national organisation that supports people with learning difficulties, their families, friends and organisations across Wales to develop Circles of Support. We also work on a number of other projects that focus on building an inclusive society and empowering disabled people to achieve their ambitions.
Circles of Support in Pembrokeshire
The Circles Network has had some success in other counties and Lyndsay's post is a scheme set up to give people in Pembrokeshirethe opportunity to learn about Circles Network and to try and set up circles of support around people with learning difficulties giving them a chance to try forming a circle if they so wish. Lyndsay has already started working with several families who are trying to create a circle of support around their son or daughter in Pembrokshire.
Lyndsay Bone, Pembrokeshire Facilitator
is based in Pembrokeshire, Lyndsay supports Families/Carers of people with learning difficulties across Pembrokeshire
who want to start their own Circle of Support. This enables the families to receive more support and for individuals to
combat social exclusion. Within Pembrokeshire, due to a recent funding success, we are pleased to announce that our remit
also now encompasses children and young people with mental health differences and their carers/families.
or Tel: 01348 831056 mobile: 07970 604165 Email: firstname.lastname@example.org
Or check out the circles web site for more information: www.circlesnetwork.org.uk
"Cars for Carer's" scheme in Pembrokeshire
The Cars for Carer's scheme was originally run as a pilot scheme by Jill Edge R.S.V.P. (Retired and Senior Volunteer Program) project worker who realised after talking with Sally Davies the Carers Development worker (both based at P.A.V.S.) that transport was a big problem for many Carer's for all sorts of reasons so Jill worked very hard with the help of volunteer drivers who are paid expenses at getting the Cars for Carer's scheme off the ground. It was originally funded by the Carers Special Grant in Pembrokeshire and has proved a very practical way of helping a lot of Carers in Pembrokeshire over come their transport needs. But in order to become established the scheme required further funding and support to carry on the good work. Jill and team have successfully applied for and received funding for a further 3 years. The scheme was also recognised by being nominated for a community Care Award 2002 presented at the Hilton Hotel in London.
Carer's need your help. So if you are a car owner who loves driving with some time on your hands? "Cars for Carer's"would like to hear from you. We need drivers from all over Pembrokeshire with full driving license, Comprehensive Insurance & Mechanically sound vehicle. If you are interested in helping Carer's carry out essential journeys then please contact:
Rachel Evans (Based at PAVS) 01437 768195
Mobile: 07733 265769
And Carer's if you are in need of Transport and need to go on an essential journey or visit to a G.P, Dentist ,Chiropodist,
attend meetings or a Carers group, meet with friends or visit a relative or just to have a break
Tel. "Cars for Carer's" Organiser's:
John and Denise Hulme on 01646 685952
on Wednesdays, Rita can be contacted on 01437 767790.
And far north of the county passes completely to:
Maria Woolnough 01239 621476
costs based on local
(at least 24 hours notice is required)
Carer's make a contribution towards costs also concessionary passes can be used.
Direct Payments and the Rowan Organisation in Pembrokeshire
Elaine Nicholas is now working as the new Independent Living Adviser (I.L.A.) on Direct Payments in Pembrokeshire. Her colleague David Evans also an (I.L.A.), works in the county of Carmarthen and Project manager, Carole Kulman and another (I.L.A) Veronica Lewis is working in the county of Ceredigion, and they are all representatives of the Rowan Organisation. Based in Warwickshire, it is a growing organisation that has been successfully providing services in and around the county to disabled people for over twenty - five years.
What then is a direct payment?
It is a cash payment made to you directly so that you can buy and organise your own help and support rather than having social Services arranging or providing you with a service. It is this cash payment that presents you with choices and allows you the flexibility to plan what you actually need. There are some people with learning Disabilities who have special needs where the present Day Services, Family Aide provided, and planned Respite Care, and available help and support simply don't fit their own particular needs. For e.g. People with challenging behavior, Autism, medical problems or simply someone who would like to lead their life they way they would like to. Some Parent/Carers have said they are very satisfied with the Day Services provided but that the Respite Care available does not suit their own son or daughter's needs. Direct Payments can be used like a pick and mix and would allow you to purchases your Respite Care separately from Day Care and other services. For some Parent /Carers their son or daughters needs are not met by any of the above (because they don't fit into a particular slot they have no support at all) and they badly need help and support tailored to suit their own individual circumstances and needs.
Direct Payments could be the answer.
Some money has now been made available from the Welsh Assembly to carry out this scheme. But for many people this would be an extremely daunting process to start or organise. The Rowan Organisation can help you to find out more about The Direct Payment Scheme and help and support you to; to recruit, employ and manage your own staff, organise their working hours and duties, complete staff time sheets, pay rolls and accounts and ensure that the Direct Payment money buys the help you need and that the schemes formal procedures are followed. You have nothing to lose and every thing to gain. If you would like further information about The Rowan Organisation and about how to access the local support team please contact.
The Rowan Centre
Tel. Free phone 0800 7831755
Wales Learning Disability
HELPLINE 0808 8000 300
Employment housing health support learning welfare benefits membership
Mencap Cymru provides support and information on a wide range of issues that affect people with a learning disability their families and Carers across Wales.
The Wales Learning Disability Helpline gives YOU direct contact with the Mencap Cymru Community Support Team and Independent Support and information Services. (ISIS)
Your call to Mencap Cymru is
CONFIDENTIAL and FREE
We are open
Monday to Friday 8.00am to 8.00pm and Saturday and Sunday 10.00am 4.00pm.
If you need help outside these hours, call and leave a message. We'll get back as soon as possible.
FREEPHONE 0808 8000 300 or click to E-mail
www.mencap.org.uk (good website to visit)
New Mecap Welfare Benefits Service
The Community Fund has awarded £275,000 to a new Mencap Project, The Welfare Benefits and Advice Support Service aims to enable young people, aged 16-20 years with a learning disability and their Carers to access benefits advice and support. For more information contact:
Dawn Black or Keith Roper at the Welfare Benefits Unit On 01978 267336
NCH Children's Centre
(They produce a News Letter called Merlin's Messenger ask for a copy)
The centre offers advice, support and information to families who are caring for a child who is disabled or who has special needs. At the centre they can offer both an information service and a place to meet. There is also a pilot key worker system available for a limited number of families who care for a severely disabled child who receives more than one service. These workers can co-ordinate services, offer support to the whole family, provide information or act as an advocate when necessary.
Pembrokeshire Children's Centre
Unit 6 Merlin's Court
SA 61 1SB.
Tel No. 01437 764569. Fax 01437 779155 or click to E-mail
Website : www.nch.org.uk
New Local Web site: www.pembrokeshirechildrenscentre.co.uk